Wednesday, April 30, 2014

30 April 2014 Oncology visit for results of recent scans - not the best result!

I kept myself busy this morning with housework, social media and sorting paperwork out until about midday.

Keith suggested a drive up to Mt Macedon in 'his' car prior to the appointment late afternoon with my oncologist.   So we enjoyed a nice drive in the hills and a coffee/chat with friends while there.

By mid afternoon I was stressing out with trying not too stress out - if that makes any sense!  On arrival at my oncology appointment there was a delay of an hour in the waiting room - I tried to calm my mind doing light meditation while Keith read a car magazine (his way of keeping calm) .... .

With my oncologist we spoke about my recent trip to Washington, DC and ADAO's 10th annual Asbestos Awareness Conference then he said to please hop on the table and I will examine you.   As soon as he felt my tummy area his comment was that there was quite a bit of fluid there.

So results in simple form:
 A big mass just under the left hand side of lung area that was not there 6 months ago.  Elsewhere a lot of fluid/tumours growing .... .

What to do??   
A team talk at the Austin hospital in Melbourne with other specialists.
There are 2 trials at the moment however I most probably will not be a candidate due to having both pleural and peritoneal mesothelioma, have had numerous surgeries and also heaps of chemotherapy.

Next Tuesday or Wednesday I will start chemotherapy of Carboplatin and Alimta.
(Cisplatin would be better however my body is now too toxic due to all the Cisplatin that I have had in the past).

Mesothelioma is again showing its ugly head!   A fight on my hands once again to live with it and with quality of life, hopefully until my next birthday April 20 2015!  I still have a lot of asbestos advocacy, education and support work to do!


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