My oncology appointment is now scheduled for this coming Friday 5 July at 5pm in Melbourne - results of my recent scans and also after the multi disciplinary medical team discussion about my case the previous day.
An associate professor from America contacted me to do an email interview on mesothelioma and women. He was particularly interested in the link with my father's exposure and ultimate death of pleural mesothelioma in 1985.
The School of Human Movement Studies, University of Qld also contacted me for more paperwork/scan details as they are doing a Nutritional status, dietary intake, body composition and quality of life of patients with an asbestos related disease research study.
If anyone living with mesothelioma/asbestosis in Australia would like to participate in this study, please contact:
Dr Maeli Campbell-McNulty
C/- Judy Bauer
School of Human Movement Studies (#26B), Room 539
Cnr Blair Drive & Union Road
The University of Queensland - St Lucia Campus
Brisbane Qld 4072
Email:
maeli.campbellmcnulty@uqconnect.edu.auCnr Blair Drive & Union Road
The University of Queensland - St Lucia Campus
Brisbane Qld 4072
Below is an extract from a letter back to me in regards 'recruiting' volunteers living with mesothelioma/asbestosis in Australia and who would like to participate.
Hi Lou
It is wonderful to hear from
you. We are very happy to hear from volunteers living interstate as
components of the research project such as questionnaires related to
dietary intake and quality of life could be undertaken from anywhere.
The body composition
component is only available for those volunteers able to attend
University of Queensland as specialised equipment is required. There is
very little published literature regarding dietary intake, quality of
life and body composition in patients with asbestosis
or mesothelioma – we hope this study will inform the development of an
intervention trial particularly for mesothelioma patients and are
particularly interested in mesothelioma survivors. If you are able to
assist in increasing awareness of this project via
Facebook or your other contacts, we would be most grateful.
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